Tag: Rare disease

  • Mental Health Panel at RARESummit 2025

    In November last year, I attended RARESummit 2025, and sat on a panel talking about mental health in the rare disease world. Jo Balfour, managing director of CamRARE kicked off the event in her keynote speech, celebrating 10 years of CamRARE. She shared 10 moments covering 10 years of the charity, sharing highlights and lessons…

  • RAREFest 2024

    I am a bit late to the party on this one, but back in November 2024, I gave a talk at RAREFest, asking the question “Can science be kinder to disabled people?”. But before I can give you my answer, let’s talk about RAREFest. RAREFest is a bi-annual festival in Cambridge, run by Cambridge Rare…